Maybe that's not the best description but it definitely tastes weird. It can cause side effects that range from mild to serious. Before starting Topamax treatment, tell your doctor if you follow a ketogenic diet. Maria Charbonneau, PharmD, Courtney Doyle-Campbell, PharmD, AHSCP-CHC, Corey Laskey, PharmD, BCPP, Kam Capoccia, PharmD, BCPS, CDE, Carbonation dysgeusia associated with topiramate, American Journal of Health-System Pharmacy, Volume 77, Issue 14, 15 July 2020, Pages 11131116, https://doi.org/10.1093/ajhp/zxaa123. Dysgeusia. Glaucoma. If you develop serious side effects while taking Topamax, call your doctor right away. Specifically, Topamax is used in adults and some children to: The active ingredient in Topamax is topiramate. (The average amount of weight lost in these studies wasnt noted.). What I learned and what the Dr. Reccomended was take B vitamins every day. UPDATE: OMFG! 2023 Healthline Media LLC. After you stop taking Topamax, the symptoms you were taking it for may return. Your doctor can help determine whether treatment with Topamax is safe for you if you have liver problems. It all tastes weird & just bad, like an awful stinging, metallic taste on my tongue. Last medically reviewed on October 25, 2022, Trokendi XR, which is used for epilepsy and migraine, can cause side effects such as weight loss. Serious side effects that have been reported with Topamax include: If you develop serious side effects while taking Topamax, call your doctor right away. Luykx et al12 performed a meta-analysis of 10 randomized controlled trials to compare topiramate-related adverse drug reactions in patients taking topiramate for epilepsy and those taking topiramate for migraine disorders. In clinical trials, how often certain side effects occurred varied depending on which dose of Topamax was taken. So my doctor asked me to start taking it after lunch. Your doctor can help determine whether treatment with Topamax is safe for you. Topamax is used to treat epilepsy and to prevent migraine headaches. Try to remove any weapons, medications, or other potentially harmful objects. Learn. Thank you for submitting a comment on this article. Maybe that's not the best description but it definitely tastes weird. In studies, this side effect was more common in people who took the drug to treat epilepsy than to prevent migraine headaches. I know topamax (topiramate) for migraine also works as appetite suppressant, but what is the chemical reason? I lost a bunch of weight on Topamax, for several reasons. Then, you can share this information with your doctor. This material is provided for educational purposes only and is not intended for medical advice, diagnosis or treatment. Mouths are sensitive to the effects of carbon dioxide, the substance that initiates the chemical pathway eliciting a fizzy and tingling sensation upon consumption of carbonated beverages.19 Results from Dunkel and Hofmanns18 study suggested that CO2 acts on the sour taste system as well as somatosensory pathways; the fizzy and tingling perception of carbonated beverages is likely due to gustatory and somatosensory inputs leading to multimodal sensation. This registry helps healthcare professionals collect information about the safety of medications such as Topamax during pregnancy. Topamax (topiramate) tablets, for oral use; Topamax (topiramate capsules) sprinkle capsules, for oral use. This list doesnt include all possible mild side effects of the drug. You can take Topamax with food or without it. Get prescriptions or refills through a video chat, if the doctor feels the prescriptions are medically appropriate. Cookie Notice Liver problems. By accepting all cookies, you agree to our use of cookies to deliver and maintain our services and site, improve the quality of Reddit, personalize Reddit content and advertising, and measure the effectiveness of advertising. At that time (and also during the initiation and titration of topiramate), the patient was not taking any other medications, vitamins, or supplements. Following a brief loss of consciousness, she was brought to the emergency department by ambulance, and levetiracetam was initiated. If you know someone at immediate risk of self-harm, suicide, or hurting another person: If you or someone you know is having thoughts of suicide, a prevention hotline can help. Children are less likely than adults to experience the following side effects from Topamax: Also, children taking Topamax may experience decreased bone mineral density (BMD). Topamax is a brand-name prescription medication that's FDA-approved in certain situations to: Prevent migraine headaches in adults as well as children ages 12 years and older. ', Can someone tell me if I will ever enjoy Coca Cola ever again? They may suggest medication to manage your symptoms. Its possible to have hair loss while taking Topamax. And its not likely to cause liver problems unless youre also taking other drugs that can harm your liver. The drug comes as tablets that you swallow and as sprinkle capsules. Talk with your doctor about your health history before you take Topamax. Topamax is also commonly used to prevent migraine headaches in adults. Theyll likely give you tests to make sure you arent having severe eye problems. Your doctor may monitor your acid levels more closely than usual during treatment. If you have breathing problems or lung problems, you may be at increased risk of metabolic acidosis if you take Topamax. Created for people with ongoing healthcare needs but benefits everyone. For the most part, side effects of Topamax in children are similar to those in adults. Additionally, missing too many doses of Topamax (or suddenly stopping the drug) may increase the risk of seizures. Find a helpline in your country with. These side effects may be temporary, lasting a few days or weeks. Cognitive side effects of Topamax can include: Your risk for cognitive side effects from Topamax increases if you start with a high dose, or your dose is increased quickly. When my doctor prescribed Topamax to me I was also in bed crying, we were on Zoom together, so maybe she said something about my taste buds going funky and I don't remember lol. Although topiramate has multiple mechanisms of action, its carbonic anhydrase inhibitory effects are similar to those of acetazolamide.17. Medication-related changes in taste are important to identify because such changes can lead to poor medication adherence and negatively affect chronic disease management.2 Taste disturbance can also negatively affect nutritional status; one study found that individuals with taste disturbances consumed 500 fewer calories per day and ate fewer fruits and vegetables than those without taste disturbances.22 With dysgeusia, one may be more inclined to compensate for the altered taste with added salt or sugar, which can also negatively affect health outcomes. Healthline Media does not provide medical advice, diagnosis, or treatment. bronchitis. Joeyshoney And some may be easily managed, too. However, missing doses may cause you to have symptoms of the condition youre using Topamax to treat. If youd like to notify the FDA about a side effect youve had with Topamax, visit MedWatch. mood changes (see Mood changes just above), swelling under your skin, typically in your lips, eyelids, feet, or hands, swelling of your mouth, tongue, or throat, which can make it hard to breathe. These side effects can vary depending on which condition the drug is being used to treat. All rights reserved. Be sure to talk with your doctor about your health history before you take Topamax. Topamax (topiramate) is a prescription drug thats used to treat epilepsy and help prevent migraine headaches. If you develop a side effect while taking Topamax and want to tell the FDA about it, visit MedWatch. Oh Yes.. Topamax made me stupid and crave non fat milk like it was the best thing in the world. Increased acid in your blood is also a potential side effect from taking Topamax. Theyre also more likely to be born small for their gestational age. Before taking Topamax, tell your doctor if you have kidney problems. If the side effects seem life threatening or if you think youre having a medical emergency, immediately call 911 or your local emergency number. This side effect was somewhat common in clinical trials. Does Topamax cause long-term side effects or permanent side effects? If you have kidney problems, such as chronic kidney disease, you have an increased risk of both metabolic acidosis and kidney stones as a complication. It furthers the University's objective of excellence in research, scholarship, and education by publishing worldwide, This PDF is available to Subscribers Only. Disclaimer: Healthline has made every effort to make certain that all information is factually correct, comprehensive, and up to date. Talk with your doctor about the possible risks of taking Topamax if youre pregnant or planning a pregnancy. Taste buds are each made up of taste receptor cells that bind to small molecules related to flavor. 1. Department of Pharmacy Practice, Western New England University College of Pharmacy and Health Sciences, Address correspondence to Dr. Charbonneau (. Swallow the food mixture right away without chewing. Mild side effects from Topamax are common. Your doctor may prescribe a temporary treatment to help you manage these side effects for a short period of time. You can register by visiting the program website or calling 888-233-2334. We link primary sources including studies, scientific references, and statistics within each article and also list them in the resources section at the bottom of our articles. This medication is also used to prevent migraine headaches and decrease how often you get . Specifically, the drug can cause decreased growth in children. A 39-year-old Caucasian woman with epilepsy had a generalized seizure after 12 years without use of antiepileptic medication. Taking Topamax can cause hair loss as a side effect. I've been on Topamax for two months and I still can't stand to smell food, or taste what I eat or drink. You may have changes in your sense of taste as a result of taking Topamax. so it'll stop working? And if you experience suicidal thoughts, its important to get help right away. Official answer. They can help answer any questions you have about side effects from taking the drug. If you have questions about possible long-term side effects of Topamax, talk with your doctor or pharmacist. Call 911 or your local emergency services number if you feel safe to do so. In theory, because carbonic anhydrase is a zinc metalloenzyme, administration of carbonic anhydraseinhibiting medications may lead to zinc deficiency and, ultimately, taste distortions. Like all medications, Topamax can cause side effects. Drugs.com provides accurate and independent information on more than 24,000 prescription drugs, over-the-counter medicines and natural products. Ketogenic diet. Possibly. Why does the taste of topamax (topiramate) stay in my mouth and how can I get it out? Note: After the Food and Drug Administration (FDA) approves a drug, it tracks side effects of the medication. (Withdrawal symptoms are side effects that can happen when you stop taking a drug.). Some side effects can cause long-term effects if they arent treated, such as increased pressure in your eye. It can lead to blindness if its not treated. Although the sense of carbonation when drinking with a straw was not as intense as it was prior to topiramate initiation, she noticed considerable improvement; the straw enhanced the carbonation taste sensation enough to make some carbonated beverages palatable.. In rare cases, Topamax can cause metabolic acidosis, which can lead to kidney stones if it isnt treated. Bone problems. I want real experience please not someone posting side effects to the medicine as I've read those already. Keep reading to learn about the common, mild, and serious side effects of Topamax and ways to deal with them. These are just a few of the more common side effects reported by people who took Topamax in clinical trials. For a general overview of the drug, including details about its uses, see this article. Oxford University Press is a department of the University of Oxford. Thanks. Scan this QR code to download the app now. Apparently it does make soda taste weird!!!!!!!!!!! Before taking Topamax, tell your doctor if you have mood problems such as depression. They can suggest ways to maintain a weight thats healthy for you. I don't even drink pop anymore. For permissions, please e-mail: journals.permissions@oup.com. However, whether zinc supplementation may be beneficial for carbonation dysgeusia remains to be established. The sprinkle capsules can be swallowed whole or opened and poured onto food. Are Topamax and Trokendi XR the same thing? Anticholinergic medications are associated with dry mouth, which can be interpreted as a metallic taste. The hair loss may or may not effect you but none of those vitamins or supplements are dangerous and can be found in everyday foods. Najafizade N, Hemati S, Gookizade A et al. UPDATE: OMFG! Try searching for what you seek or ask your own question. So it may be hard for you to tell if sexual side effects are caused by Topamax itself or by certain mood changes the drug may cause. So I've been on Topamax since around September and I've only lost like 3 lbs unfortunately lol. Lung problems. The taste of food/drink however will remain the same the entire time you are on Topamax no matter what the dose. This was also reported by people taking the drug to treat epilepsy, but it was less common. * This side effect can affect your ability to drive or safely operate machinery. Soda still tastes strange. you are totally right. Topamax may cause mild side effects other than the ones listed above. The patient reported good adherence to the medication, missing less than 1 dose per month. Some of these side effects are mild, while others can be more serious. SoI've been taking Topamax for a little over a week. Tell your doctor if you have liver problems before starting Topamax treatment. Do the side effects of topamax (topiramate) go away while taking it? It may not be safe to use Topamax while breastfeeding. More common side effects in people taking Topamax for migraine include: More common side effects in people taking Topamax for epilepsy include: Read on to learn about other mild and severe side effects that can happen with Topamax. Or you may notice a metallic or unusual taste in your mouth. .it is the topamax. However, this article should not be used as a substitute for the knowledge and expertise of a licensed healthcare professional. All rights reserved. The first beverage she tried following initiation of topiramate 25 mg by mouth twice daily was cold seltzer water from a can, and she immediately noted a flat taste. I've been on Topamax for two months and I still can't stand to smell food, or taste what I eat or drink. Highlights of prescribing informationTopamax, A method for estimating the probability of adverse drug reactions, Topiramate in the treatment of partial and generalized epilepsy, Topiramate as an inhibitor of carbonic anhydrase isoenzymes, Carbonic anhydraseIV mediates the fizz of carbonated beverages, Side effects of acetazolamide: the champagne blues, Altered taste secondary to acetazolamide therapy, Energy and nutrient consumption of patients with dysgeusia, The effect of different methods of drinking a carbonated beverage on the pH of dental plaque: an in vivo study, Preventive effects of zinc sulfate on taste alterations in patients under irradiation for head and neck cancers: a randomized placebo-controlled trial. Search for other works by this author on: Courtney Doyle-Campbell, PharmD, AHSCP-CHC, Taste and smell disorders in clinical neurology, Drug-related taste disturbance: a contributing factor in geriatric syndromes, Influence of medications on taste and smell, Smell and taste disorders: a primary care approach, Topiramate for migraine prevention: an update, The roles of carbonic anhydrase in gustation, olfaction and chemical irritation, Topiramate for the prophylaxis of episodic migraine in adults, Are migraineurs at increased risk of adverse drug responses? What are the serious side effects of Topamax? Aswini et al23 noted reduced dental plaque when carbonated beverages were sipped with a straw; the straw concentrated the beverage on the tongue and minimized full-mouth exposure. It may not be safe to take Topamax while pregnant. Prior to the administration of topiramate, the patient had never experienced a loss of carbonation sensation while drinking numerous varieties of carbonated beverages throughout her life. BMD describes how strong the bones are. I also lost all interest in food, no apetite, had no energy to cook it, and just threw it up if I did eat it. Note: After the Food and Drug Administration (FDA) approves a drug, it tracks side effects of the medication. 15 min from L. See the Topamax prescribing information for details. Below are a few questions you may want to ask: If you have migraine, consider signing up for Healthlines online newsletter. I will have a definite problem if any of my hair falls out - I absolutely adore my hair i spend hours fixing it in the morning! Rarely, Topamax may cause mood changes. Make sure to call your doctor right away if you have symptoms that are severe or bother you. Following a ketogenic (keto) diet can increase acid levels in your blood. The drug makes food taste strange or even bad, and reduces food cravings. Many are mild and tend to go away on their own after a few days or weeks. Talk with your doctor if youre concerned about your weight while taking Topamax. Any medical information published on this website is not intended as a substitute for informed medical advice and you should not take any action before consulting with a healthcare professional. If you have glaucoma, Topamax may not be safe for you to take. These articles might help: Disclaimer: Medical News Today has made every effort to make certain that all information is factually correct, comprehensive, and up to date. They are a BIG help and got my hair growing back. It is labeled for blood pressure, but I get it for off label OCD/SSRI intolerance.
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